The New FDA Safety and Innovation Act
US President Obama recently passed the new US FDA Safety and Innovation Act which will most likely assist breakthrough therapies targeting rare diseases making them more accessible to patients. The National Organization for Rare Disorders (NORD), largely responsible for this new legislature, has helped to create a focus on critical issues affecting patients suffering from rare diseases.
The most significant legislature to favor innovative drugs for rare diseases since the Orphan Drug Act of 1983, this new legislature is expected to improve communication between FDA reviewers and medical rare disease experts to ensure that patients safely access new treatments more quickly.The act also gives priority to pediatric rare diseases to help improve safety and increases involvement by rare disease experts. For the 30 million Americans suffering from rare diseases, this new legislature brings about key change.
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